Wednesday, April 9, 2008

UPDATE ON JILLIAN

Good Morning,

I wanted to update everyone on Jillian's hermangeoma (spelling?) We went to a pediatric dermatologist yesterday. The Dr. said she thought it was growing a bit faster than it should and she also said she didn't know why (thats why we pay them the big bucks). Sorry I don't mean to sound bitter its just that we waited over an hour to see her and for her to say this bothered me. Oh well. She did say that our options were that we could go to a pediatric plastic surgeon, who would administer steroid shots into the sight and that would possibly stop the growing and start to make it shrink. She said if that didn't work we would wait until Jillian were about to start Kindergarten and have it removed if it weren't showing any signs of going away on it's own. Also to clear something up, it is not CANCER, I have had several people suggest to me that this is what they think it is (I guess when something isn't "normal" on a child we all try to become experts). And one more thing, I was going to apologize for the following and then I remembered it's my blog. People can be so RUDE (at the grocery store, at church (yes it can occur there) and at the doctor's office) the stares, the looks, the questions and my favorite the facial expressions people give sometimes when they see Jillian's "spot". It is one thing to ask and be concerned BUT the folks I am talking about are the ones that shrink up their nose and say eww what's that ? NEVER in 1.5 billion years would it occur to me to do that to someone I know let alone a complete stranger. I read another blog about a little girl who is going and gone through so much and right now she is experiencing some facial swelling and she said "she is going to have to get some thicker skin to deal with the comments she hears about her daughter", Well I guess I am going to have to do that as well. Thank you for letting me VENT! HAve a great day!

3 comments:

Tamara said...

I love you and want to love on your babies and your Will!!! The girls are PERFECT!!!!! PERFECT!!!!

MMMandM said...

girl, for what it's worth, we do have some experience with hemangiomas (sp?). Macie has one on her lip that shrunk down to about the side of a pin dot by the time she was five. it seemed to grow quickly until she was about two, the slowly shrunk back down.

thinking of you!!

Mollie

Elizabeth S said...

I love you and hope you can find something out! The girls are so beautiful. I was looking at them at church yesterday and can't get over how fast they are growing! Perfect, absolutely perfect. Love you guys!